Understanding HTLV-1. Supporting Patients. Advancing Care.
Trusted information on HTLV-1, adult T-cell leukemia/lymphoma (ATLL), HAM/TSP, prevention, testing, treatment, and research—for patients, families, physicians, and scientists.
ABOUT HTLV - WHY THIS MATTERS
A Trusted Resource for Patients & Professionals
This website is a central hub for people affected by HTLV-1 and for the professionals working to improve outcomes. Patients and families can learn the basics, find support, and understand next steps. Clinicians, researchers, and partners can access tools, research pathways, and educational resources.
New to HTLV-1
Learn more about HTLV-1, associated diseases, support systems, and professional resources.
Understand ATLL & HAM/TSP
Learn more about HTLV-1, associated diseases, support systems, and professional resources.
Find Help & Resources
Learn more about HTLV-1, associated diseases, support systems, and professional resources.
About HTLV-1
What Is HTLV-1?
HTLV-1 is a human retrovirus that can stay in the body for life. Most people with HTLV-1 never develop serious illness, but some may develop inflammatory or cancer-related complications over time, including ATLL and HAM/TSP
About HTLV-1
HTLV-1 Health Risks
Most individuals remain healthy carriers, however a minority may develop serious inflammatory or cancer-related complications.
ATLL
A rare blood cancer linked to HTLV-1.
HAM/TSP
A neurologic disease affecting mobility and quality of life.
Other Complications
Eye, skin, inflammatory, and infectious complications may occur.
Prevention & Transmission
How HTLV-1 Is Transmitted
Sexual Contact
Breastfeeding
Blood Exposure
Needles/shared injection equipment
HTLV-1 is not spread by casual contact like hugging, sharing meals, or living in the same household.
Help & Hope
You Are Not Alone.
A diagnosis can feel isolating, especially because many people have never heard of HTLV-1. Early information, expert care, and the right support network can make a meaningful difference.
For Medical Professionals & Researchers
Dedicated access for physicians, researchers, trainees, industry, and advocacy partners, including clinical guidance, expert tools, referral pathways, and research links.